tag:blogger.com,1999:blog-5043937129051979490.post1126780414352174209..comments2023-05-11T09:31:29.021-06:00Comments on Enjoy Everyday Moments: I wish I were a doctor ...Our Ohanahttp://www.blogger.com/profile/09558128178113250584noreply@blogger.comBlogger8125tag:blogger.com,1999:blog-5043937129051979490.post-21236669593724267692009-07-29T00:08:22.359-06:002009-07-29T00:08:22.359-06:00Oh Jami, it was so good to see you today! You are...Oh Jami, it was so good to see you today! You are amazingly strong!!! Thanks also for keeping us updated on Cameron, you guys are always in my prayers!! <br />Love ya girl!Karahttps://www.blogger.com/profile/15554451399330758197noreply@blogger.comtag:blogger.com,1999:blog-5043937129051979490.post-48030918060255450892009-07-28T15:52:05.592-06:002009-07-28T15:52:05.592-06:00I know you have a good team of doctors and that th...I know you have a good team of doctors and that they are doing their best to get Kameron back up to speed. Sometimes you *do* have to wonder, though, if they actually talk to each other very much, or if there is someone who sees the *BIG* picture, because the story seems to change with which doctor you're talking to (like the pulmonologist saying he's *sicker* while the other Drs seemed pleased with his progress...)<br /><br />Do you have access to a lupus-specific support group to help translate the Dr-ese? <br /><br />Keep taking care of yourself and your family and know you have loved ones around the country still rooting for you all...Julinahttps://www.blogger.com/profile/10373331914121855263noreply@blogger.comtag:blogger.com,1999:blog-5043937129051979490.post-3838092187794932492009-07-28T04:58:31.192-06:002009-07-28T04:58:31.192-06:00Your family and your son are in my prayers. The pl...Your family and your son are in my prayers. The plasmapheresis and the cytoxan ARE treatments for the lupus. The first removes autoantibodies and the second stops the immune system from making them. It is Kameron's immune system attacking different parts of his body that causes the problem. That is what lupus is. And those of us with lupus need specialists, often a small army of them, to deal with the parts of our bodies that are affected. The doctors are taking very aggressive steps to help your child get better!Linda Ruescherhttps://www.blogger.com/profile/10777929162356686223noreply@blogger.comtag:blogger.com,1999:blog-5043937129051979490.post-33879868242958408162009-07-27T17:33:39.731-06:002009-07-27T17:33:39.731-06:00You are such a trooper...We pray for the best for ...You are such a trooper...We pray for the best for Kameron!Cory, Jaime, and Caydenhttps://www.blogger.com/profile/06155747436944897257noreply@blogger.comtag:blogger.com,1999:blog-5043937129051979490.post-34328512710202601112009-07-27T15:37:13.556-06:002009-07-27T15:37:13.556-06:00I hope things improve and that the doctors make yo...I hope things improve and that the doctors make you understand everything!! You are one strong woman!!!Kmelanesehttps://www.blogger.com/profile/07532255680118522039noreply@blogger.comtag:blogger.com,1999:blog-5043937129051979490.post-11185970349641770192009-07-27T13:39:50.018-06:002009-07-27T13:39:50.018-06:00Bless you for keeping us all up to date and stayin...Bless you for keeping us all up to date and staying so optimistic! This must be incredibly hard for you, and you are being so patient and encouraging. Remember, when we all look back, this will just be a short second in time - hang in there - you are in all our prayers!!Hopehttps://www.blogger.com/profile/09089509818864851620noreply@blogger.comtag:blogger.com,1999:blog-5043937129051979490.post-26794139030138121062009-07-27T13:36:49.356-06:002009-07-27T13:36:49.356-06:00youre so good at updating. we appreciate it. <3...youre so good at updating. we appreciate it. <3Holly Steffenhttps://www.blogger.com/profile/05425518881230704706noreply@blogger.comtag:blogger.com,1999:blog-5043937129051979490.post-33212382117138710782009-07-27T11:41:32.749-06:002009-07-27T11:41:32.749-06:00What a roller coaster. I know what you mean about ...What a roller coaster. I know what you mean about understanding what the doctors are saying and wondering about what they're not saying.Anonymoushttps://www.blogger.com/profile/07973665182647451074noreply@blogger.com