At Kameron's appointment on Thursday he had lost 2 more pounds. It was SO frustrating to all of us. We shoved so much food in him and he still lost weight. THANKFULLY - Dr. Montierth is going to hold off on putting him in the hospital because he is really wanting him to see a couple specialists this next week. We're going to see a hepatologist who will hopefully be able to tell us how bad his liver is and also he will be able to tell us if Kameron has hemochromotosis (I don't know if I spelled that right) What that is, is a disease where his body has a hard time getting rid of iron. It stores it mostly in his liver. It is one of the main causes of liver failure. So ... after we see that doctor and his rheumatologist (she's been helping us get his lupus under control) then we'll know a lot more about what is going on and what is going to happen. Things are looking a lot more promising. It's just hard to watch Kameron be in so much pain and be so uncomfortable and there is nothing I can do but play the waiting game. I am glad we have good doctor's we're working with who I have a lot of faith in or this would be a lot harder. I guess it pays to live in a large LDS community at times like this!!
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Also, I know I will never have the time (or energy) to personally thank all of you for you well-wishes and prayers. So, I want to let you all know how much we really appreciate your prayers at this difficult time in our lives. We are truely blessed with wonderful family and friends who are a great support to us. So, thank you so very much from our little Haban Ohana. We love you guys!!
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Also, I know I will never have the time (or energy) to personally thank all of you for you well-wishes and prayers. So, I want to let you all know how much we really appreciate your prayers at this difficult time in our lives. We are truely blessed with wonderful family and friends who are a great support to us. So, thank you so very much from our little Haban Ohana. We love you guys!!
6 comments:
I'm glad things are looking a little more promising for you guys. The doctors you are working with sound great and I hope they continue in getting Kamron better soon.
Thinking of you guys and we will continue to keep you in our prayers!!!
We will keep praying that good things continue to happen! You and your family are such strong examples of how to live by faith. I know it is probably hard to find time to continue blogging but thank you for the update. We miss you guys and will keep praying for you!
thanks for the update. jami, i have been thinking about you and your family so much the past 2 days since i read your last post. i even woke up a number of times last night thinking about you. i hope that doesnt sound creepy! let me know if there is anything i can do to help you if you do end up coming to the valley. we have 2 spare bedrooms and i know brynlee would love a play mate! seriously, i would love to do something, anything to help you.
I'm glad that things look promising. I also have been thinking about your family and hoping and praying for you. Thanks for the update. We'll keep praying.
Hoping and praying for the VERY best!!!!
Wow Jami! You are an inspiration to me. I love your attitude and the way you are choosing to handle this hard situation. We are thinking about you and praying for you and your family.
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