Enjoy Everyday Moments

Last night, after eating dinner, I came back to the hospital around 9pm. I only stayed for just over an hour but, in that hour - Kameron was a PILL! He tried pulling his breathing tube out, pulling off the respirator tubes, pulling out his NG tube (which is a nasogastric tube, it goes through his nose into the stomach and pumps everything out of his stomach.) pulling out one of his central lines, pulling off the things on his chest. I was constantly putting his hands down saying, "You gotta leave your hands down!" He would guesture to me, "Why?!" And I would just tell him, "because they will help get you better!!"

It was SO frustrating but, I totally understood where he was coming from. The charge nurse was explaining to us why he's like that ... this new sedative he's on works better than the other one so he is sedated more. When he wakes up he panics and wonders why he has tubes down his throat. The last sedative he was on didn't work so well, so he was awake practically the entire time and he was aware of what was going on. Most of the night he was pretty anxious, didn't get much sleep.

So, today, they have put him on TWO sedatives. He is on, Midazolam and the Propofol. So far it seems to be working. He hasn't been awake at all today.

He has been running a fever so they have done blood cultures to find out where he has an infection. Last I heard his fever was 101.0. They also just did a chest x-ray to see how his lungs are looking. They have talked a little more today about doing the tracheotomy today but, I haven't heard anything else.

Today, I am exhausted and it's FREEZING in his room, so I really haven't been in there much. Just trying to sit in the waiting room and get a little rest.

On a side note, one of Kameron's pulmonologists TOTALLY looks like the big alien on Lilo & Stitch, he even has an accent! It cracks me up.