Wednesday, July 8, 2009

My not so new, not so normal life ...

Fourth of July for our family, was spent in the Tucson Medical Center.
While everyone else was grilling their hamburgers and corn, splashing in pools and getting ready for the fireworks, Kason, Kameron & I were in room 780 at Tucson Medical Center. We were together as a family but, we weren't doing the "normal" 4th of July festivities.

Backing up to what got us there ....

On Wednesday, July 1st - we spent the night in the ER. Kameron had a nosebleed that started at 3:30 that afternoon. It stopped for a little while but picked back up and it hadn't stopped by 10:00 that night so, we took him to the hospital. We were taken back quickly and the ER doctor mended his nose. After getting his blood work back the doctor just told us his labs were a little abnormal and his platelets were low which is what caused the 7 hour nosebleed - no platelets to clot the blood! So, they told us to call his rheumatologist and let her know about all of this and they sent us on our way!

Friday Kameron had a rough day. He wasn't feeling well at all, he didn't have an appetite, and his right lymph node on his neck was swollen. We watched him most of the day, tried to get him to eat/drink, and just let him rest. But, Friday night - the swelling in his neck spread. By 9:30 it had spread from his right lymph node to the other side of his neck and all the way down to his collar bone. He could barely move his neck and his breathing started to become very labored. So, around 10:30 we headed back to the ER. Just a quick word of advice, if it can ever be avoided - don't ever visit the ER on a Friday night! That place was CRAZY! Because of the business - we didn't get back into the ER until 1:30am! Poor Kameron was in so much pain and was so miserable. As soon as we got back into the room they got Kam some pain meds and took his labs. As soon as the ER doctor (different doctor this night) saw his results, he knew something wasn't right and he was really worried about Kameron. Kameron's eyes looked a little yellow, his liver wasn't doing it's job right and his kidney's weren't functioning right either. Not to mention - his neck was still so swollen. So, the ER doctor immediately found Kameron a room at a Tucson Medical Center! Around 5am I headed home and slept for a couple hours and around 6am the ambulance came and loaded Kameron up and took him off to Tucson.


While I was home, I packed for my Utah trip and then I headed to the hospital. When I got there a few doctors came in a spoke with us - nobody was really sure what was going on. They knew that his bloodwork looked abnormal, they just didn't know what was causing it all. So, they scheduled several tests that would get us some answers!


That night Kason and I decided to go find some fireworks. So, we told Kameron good-bye and found some fireworks at the base of 'A' Mountain. We missed Kameron so bad, especially as I watched other families spend time together. But, I knew he needed to be in the hospital to get better. Sunday morning Kason and I flew to Utah for a family reunion up there.

Now that I look back, I almost wish that I hadn't gone to Utah. But, Kameron had told me that I needed to go and we decided together that I would attend the family reunion. But again ... I have a small amount of regret for going, especially while my husband was in the hospital. Let me tell you why ...

While I was in Utah, Kameron would text me updates every once in awhile;
"I'm getting a blood transfusion"
"I have to get a liver biopsy"
"everything is fine babe, my doctors are awesome"

Also, when I talked to him he would update me as best he could ...
He had a infection on his thyroid which turned into a staph infection which has gotten into his blood stream.
His heart has an arrythmia.
His lungs have some sort of infection (either fungal/bacterial/pneumonia) and he has fluid in his lungs.

I was missing him BAD. Everytime I would learn that something else was wrong I felt horrible for not being as his bedside but, he assured me that he was doing fine and the doctors were taking very good care of him.


Last night I found out that Kameron was VERY weak, he hardly had the energy to talk. He was losing his extra energy quickly because he was having a hard time breathing. So, once I discovered this - I was anxious to get home to be with him.


This morning they did a procedure on his lungs. (a biopsy?? maybe? I can't remember the term the doctor used). They were doing the procedure right as Kason and I were landing at the airport. We headed over to the hospital and on the way I got a phone call from Kameron's nurse and another call from his doctor. They both explained to me that the procedure had gone well but, because he was having such a difficult time breathing, they had decided to move Kameron to the ICU. They wanted to be able to watch him closer and give him the close attention that he needs. As soon as we got to the hospital Kameron was just getting situated in his ICU room.


When we woke up he seemed concerned that the procedure went wrong and wondered why he was in the ICU. He didn't remember anything (which is a GOOD thing!!) and I explained to him what had happened and why he was there. Then the doctor came in and spoke with us. He expressed his concern for Kameron's high respiratory levels. Normal respiratory levels are below 20 and Kameron's were up in the upper 30s and 40s. So, we discussed putting Kameron on a respirator but, decided that we would wait and see if Kameron could continue to breathe on his own. Kason and I went to get Kason some lunch in the cafeteria. While I was there Matt called and said that they had decided to go ahead and sedate Kameron and put him on the respirator. I rushed back to his room. I was able to tell him I loved him and then they asked me to leave so they could do the procedure. When we were finally able to go back in it was SO hard on me to see Kameron sedated and with the breathing tubes. But, I also know that he won't get better if he isn't on the life support. His body has been fighting SO hard to breathe that all of his extra energy was going into his breathing. His body had no energy to fight all the other problems that were going on. If they hadn't put him on the respirator - he wouldn't get better. By doing this - his body doesn't have to focus on breathing, it can focus on getting better and fighting the infections.


The hardest part for me is not being able to talk to him. I miss getting his sweet text messages and I will miss calling him to say goodnight. It is so hard to look at his life-less body and see tubes down his throat, breathing for him. I look at things of his and burst into tears because I miss him so much. The doctor isn't sure how long he will be on the respirator - just however long it takes for everything to stabalize.


Right before we left Art, Daniel and Matt gave him a blessing. I was reassured that Kameron will be fine. This is one of the trials we need to pass through to enjoy our exaltation.
Kameron opened his eyes for a bit during and after the blessing and I was able to tell him I loved him and he nodded his head. He waved goodbye before falling back asleep.


He is such an amazing husband. So strong and full of faith. I am blessed to have him as my best friend. I know that he will get through this and that he will get to continue his role as a husband and as a father.

This is where you all come in. I know that each of you that have been aware of our situation have been praying for Kameron - for that I am eternally grateful. But, I feel that we need a little extra faith sent our way.
I am asking each of you who reads this to fast for Kameron's recovery and health on

FRIDAY, JULY 10th

Fast, pray, meditate ... please just do what you do.
Kameron will be healed by his faith and by the faith of others.

I love each of you and I am very grateful for the love and support we have felt. I will try to update as often as possible.

27 comments:

Sailing Past Maturity Straight into Senility said...

Thank you so much for getting us all up-to-date! I cannot imagine how difficult this is for you. But you are in all our prayers and thoughts - please let us know if we can do anything else.

Olivia* said...

I am so sorry that your family has had to go through this. You are truly an extraordinary woman and such an inspiration! I want you to know that we will continue to pray for Kameron especially on Friday. I know you guys will get through this and have many blessings in return! God bless!

rosessirunofam said...

Thank you very much for keeping us updated on Kameron! We are thinking about him and sending tons of prayers his way and also for the rest of the family.

Ashley said...

Oh, honey. I will pray my little heart out for your family. Love you and let me know if you need to talk.

Keri and The Boys said...

Jami, I'm sorry that this is an experience you have to go through. As the 'sick one' in my family, I know exactly what Kam is feeling and going through. All three of you are in our prayers constantly.
I have lots of friends in Tucson and if you need anything while he's at TMC, just let me know and I'll make sure it happens. We love you!

Lunt Family said...

I am leaving in a few minutes for the temple and will be sure the three of you are on the prayer roll. Having had my son at TMC recently I can tell you they have an excellent staff who will take care of Kameron. I know Heavenly Father will keep angels at his side and will also comfort you and little Kason during this time. Love you!

Lori said...

I'm so sorry you are going through this. I can't even imagine watching my husband in the hospital helpless. I will keep you in my prayers. Stay strong.

Jeremiah and Heidi said...

Oh Jaime I am so sorry for Kameron on and you, and little Kason! You guy will be in our prayers!

Mandi Lou said...

We Love you guys very much. I know the Lord will bless you! you are always in our prayers.

JR and Steph said...

Jami I'm so sorry. I can't even imagine how hard this must be on all of you. We love you and we are keeping you in our prayers.

Candace said...

Oh Jami! We will absolutely join you on Friday.

Summer said...

You are so strong! Let me know if there is anything that you need, and I will be with you on Friday!

russ said...

Jami- I'm so sorry for what you guys are going thru. We will be fasting and praying with you on Friday. If you need me to watch Kason or do anything, just let me know!

russ said...

btw: this is Laurel typing... not Russ:)

J-ME said...

Thank you so much for the update! I tried to tell Jason last night but I didn't have much information except that Kameron was sick and in the hospital! :( I'm SO sorry! You're amazing! You're in our thoughts and prayers, and we will be joining in on the fast tomorrow!

Lauren said...

I am so sorry! I hope that he continues to do ok. You will be in my thoughts and prayers. Hang in there!

Maranda Whittle said...

Jami, sorry to hear all that. Your family will be in our prayers and I'll be sure to tell Curtis what is going on.

Jessie and Byron said...

So sorry to hear about all this Jami, we hope and pray Kameron recovers quickly and can return to his normal health and strength! I will be looking fwd to updates. We will pray for him!

Hannah Peters said...

So sorry to hear that things are not going well. The important thing is that you are there for Kameron, even if it is in the hospital and not out celebrating. Family is best support.
You are all in our prayers and hope that everything begins to look up.

Heather said...

Geeeez! I can't believe all this has been going on. I am so sorry things are tough, Jami, but it's obvious your faith is strong. You are right; everything WILL be okay. I pray you may keep that faith, and feel peace through all of this.

kmelanese said...

I am so sorry your family has had to go through this. You will be in our thoughts and prayers!! I hope Kameron will recover soon and you can all be at home!!!

HollySteffen said...

love you guys. youre in my constant thoughts and prayers.....

The Sawyer Bunch said...

I love you! I'm so sorry Jami. I will be praying and thinking about you guys! I am here if you need someone to talk to <3

Tamara said...

Girl, my heart goes out to you. Just as I am typing this, I have to pause ever so often to wipe the tears streaming down my face. I can't begin to imagine the pain you and Kason are feeling right now. Our prayers are with you all, and know that Father is aware of the needs of your family and that he is watching over Kameron.

Brooks Family said...

I'm praying for your family! I'm so sorry yall are having to go through this.

Amy said...

I'll be fasting for your family tomorrow up here in Minnesota.

Becca said...

I am so sorry that I haven't read this until now. I am glad that Kameron is doing better, but I will continue to pray for you and for Kameron. You are so strong in the gospel and that was a great testimony to read. I'll be thinking about you!

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